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Naana Dei

Naana Dei

I was diagnosed in October 2019 with Dermatomyositis. It had taken a serious toll on my life where I began to lose muscle mass (almost 30lbs worth). I couldn’t dress myself, it took me 30-45mins longer in the morning, I could only walk short distances before getting winded (10-15 steps), it was hard to swallow any food with a liquid to follow… just to name a few.
– I honestly didn’t want to believe my diagnosis, I sat in the car after hearing the news and cried. I asked myself (really to God), “why me?” MANY times. I was stubborn when it came to medications, treatments, and appointments – I pushed myself harder in the times I felt the weakest or in pain. I truly thought this would be something to pass. I was wrong, I had to readjust my “norm” to accommodate the effects of my diagnosis.
– I know I have an unfulfilled purpose on this earth. A purpose that requires me to be my full self, and without me being full (mentally, physically, spiritually, and emotionally) I would not be able to fulfill my purpose in serving others. This is why I thrive regardless of my diagnosis.
– I was ultimately helpless and hopeless. As a person who is stubborn in asking for help, this beginning time of my diagnosis was the worst. Regardless of the pain I was going through I truly suffered not asking those around me for help. It really took for me to be rushed to the hospital, to start asking for help. I am grateful for my family and friends who genuinely cared about me and always there to help (even in the times I never asked)!
– To other warriors and the world: find your support system and find your community. They are two separate, your support team are your friends and family who genuinely have a concern for your health and want to HELP (not see) you get better, whereas your community are people with either the same diagnosis as you or something similar, they are the folks that you can relate to and can share triumphs and defeats with. You will know which team you will need in certain moments!

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